Resources
The Save Rare Treatments Task Force represents a diverse set of organizations working together to pass the ORPHAN Cures Act. See our evolving list of relevant research, insights, and updates related to The ORPHAN Cures Act and rare diseases to help you stay informed on this important work.
Legislation
Support Letters
- Save Rare Treatments Task Force ORPHAN Cures Act Support Letter
- The New England Council: Support of S. 3131 and H.R. 5539
- Rare Disease Company Coalition: RE: RDCC Supports S.3131/H.R. 5539, the ORPHAN Cures Act
- Save Rare Treatments Task Force: Statement for the Record, Senate Finance Committee, Full Committee Hearing “Lower Health Care Costs for Americans: Understanding the Benefits of the Inflation Reduction Act”
In the News
White Papers
- Save Rare Treatments Task Force: Landscape Analysis on Declining Investment in Rare Disease
- University of Chicago: The Potentially Larger Than Predicted Impact of the IRA on Small Molecule R&D and Patient Health
- Biotechnology Industry Organization: Understanding the IRA’s real-world impacts starts with understanding the innovation ecosystem